Patient Think Tank

On the 26^th and 27^th of October, 2014, the first meeting of the ASTERIX Patient Think Tank took place. Among its members are patient representatives in the area of (rare) cancers, Duchenne muscular dystrophy, MPS, AKU, Pompe’s disease, Hemophillia, PSC, Cystic fibrosis, and Fragile X, as well as a representative of EURORDIS.